Your part in transforming the future of local NHS care
We want to improve the care for people living with dementia in Crawley including the latter stages of the disease. Planning end of life care will allow more people with dementia to be looked after in their preferred place of care, with their advance wishes respected.
We are working with people living with dementia and their carers and families to:
- plan their care in the last years, months or weeks of their life
- develop a comprehensive package of integrated end of life and dementia care
- develop practitioners understanding, knowledge and skills enabling them to deliver safe, high quality end of life care to people with dementia.
Dr Laura Hill, CCG clinical director, said: “We are looking at how best to provide NHS care in the community. We want to ensure your experiences and views on health care services are heard as we shape future services.”
Click here to view upcoming meetings and events for this project
Patient and carer views and experiences are central to our work
To date we have:
- set up four patient, public and interest member groups
- engaged with more than 1,000 people from a wide cross section of the population
- consulted with more than 80 people with dementia, as well as their relatives and carers
What people have told us so far
To date people living with dementia and their relatives and carers have told us what is important to them is:
- Receiving consistent and relevant information
- More opportunities to discuss future plans
Health and social care professionals have told us what is important to them is:
- Developing their communication skills
- Increasing their confidence in advance care planning
- Improving recognition of end stage dementia
Peter Nicolson, Crawley Clinical Commissioning Group Lay Member for Public and Patient Engagement, explained: “As we get older we tend to experience a variety of symptoms which make us nervous about how we will be able to cope. Understanding end of life care is not about how you are going to die, but about how you and your family can get the best from the last years of your life. We want to find out what people need from them, and their carers, directly."